So it goes

It has been two years since I had my prophylactic bilateral mastectomy. January 22, 2013 was the day. At the time, I expected the breast reconstruction process to take somewhere around six months. Well, two years later I am uniboobin’ it once again and it will be at least another six months before I will have my next (last?) exchange surgery.

So it goes.

This process has not been easy. I’ve hit a couple of significant snags, but I still say this: I WOULD DO IT ALL OVER AGAIN. Knowing what would come my way, if I had to go back in time and contemplate moving forward, but not being able to change anything, I would make the same decision and do this all over again. I won’t lie, I have had bad days. They don’t come often, but they do. On those days I choose to take a deep breath and focus on the big picture and the positive. I consider the reason why I made this decision in the first place. I said NOPE to breast cancer and I would do it all over again. I choose to accept and look forward. So it goes.

Attitude


Here’s a recap of my procedures:

  • 01/2013 – Prophylactic bilateral mastectomy with tissue expander placement
  • 09/2013 – Exchange surgery
  • 10/2013 – Infection and left implant removal
  • 04/2014 – Expander placement and revision surgery
  • 09/2014 – Exchange surgery
  • 10/2014 – Right implant removal

In just a few days, on January 27, I will have surgery #7. During this procedure, Dr. M will be placing a tissue expander on my right side. Over the coming months I will again go through the expansion process until I reach 550ccs. My exchange surgery is scheduled for July 23. I feel like I’m a surgery pro at this point. The coordinator from the hospital called today and we very briefly talked about logistics of the day of surgery. She remembered talking to me before and admitted I received the condensed version of the spiel. Fine by me. I know the drill by now. I’m ready to go! Last thing to do is review my handy dandy surgery prep checklist and gather a few items.

Will I have a drain again? Will everything go OK? Will I have any more complications? I hope not, but if I do … so it goes. Shit happens. We deal with it, because we have to. Happiness (or misery) is in the heart, not in the circumstances.

You’re up

I got the call. Woo hoo! I got the call that made my day. It really made my month. There has been a cancellation and an earlier spot is available on Dr. M’s calendar. I’ve been bugging the Patient Care Coordinator for a few months now and have been at the top of the cancellation list, so the spot is all mine. My next surgery has been moved up to January 27!

That’s only two weeks away! I am ecstatic. Thee months into the six month wait, but I’ll take it!

During this surgery we are going to be placing a tissue expander on the right side, where we had to deconstruct after the last incident in October. I also got the exchange surgery penciled in for July 23. I’m at the top of that cancellation list too and may be up sooner. There is a slight chance that I’ll go right to implant and not need surgery #8, but I’m not holding my breath.

That is all. Just this awesomely good news. :)

 

Pinking of the NFL

I am a big fan of Spike’s Ink Master. It is an elimination-style reality show, where tattoo artists compete for $100,000 and a feature in Inked Magazine. On one of the final episodes last season, artists did post-mastectomy tattoos for breast cancer survivors. There were some beautiful pieces in there! Episode highlights here.

This season there is also a breast cancer-related episode and it airs tonight (November 18 @ 10pm EST on Spike). DeAngelo Williams of the Carolina Panthers appears as a guest judge. He talks about his mom and her four sisters who all died from breast cancer. The artists are designing a piece to honor DeAngelo’s family. What he doesn’t say in the previews, and I’m not sure if he mentions in the full show, is that his mother and her sisters all carried a mutated BRCA1 gene, which they inherited from their father, DeAngelo’s grandfather. He and his two sisters are negative for the mutation.

What does this have to do with the pinking of the NFL? I don’t watch football and don’t follow the athletes at all, but I have noticed that there’s an awful lot of pink out there. I did not know DeAngelo’s story or that he is largely responsible for the players of the NFL wearing pink during Breast Cancer Awareness Month. His mom was the inspiration behind the idea for players to start wearing pink cleats five years ago.

Breast cancer has affected me to my core. I’ll never forget the loss of my family members. But it also allowed me to use the platform I have in the National Football League to bring awareness all over the country. -DeAngelo Williams

In the BC and HBOC worlds there has been a lot of talk around awareness (aren’t we all aware?), the love or hate for the month of October (aka Pinktober), and pinkwashing, but that’s another topic for another day. I am just sharing the previously-unknown-to-me sotry of the pink in the NFL. Are you going to watch tonight? I am!

Related articles:

Prosthesis v2

WARNING: NSFW / graphic content below.

After I lost an implant the first time, my husband and I were planning a trip to visit his family in the Caribbean. Prior to going on that trip, I got a breast prosthesis, so that we could avoid awkward conversations about my health with distant relatives; in Spanish, nonetheless.

no pantsWell, as you already know, I’ve lost another implant. On an average day when I’m running errands or meeting friends for lunch, I go as I am and don’t even think about it. Also, I work from home. No boob? No pants? No problem! :) However, I will again be traveling in the near future, but this time it will be a trip to corporate HQ to show face and meet some new team members. So I got another prosthesis. Don’t get me wrong, I’m not shy about sharing my story (hello, blogosphere) and I am not embarrassed when uniboobin’ it, but in some close-encounter situations I don’t want to be focusing on and explaining my lack of mammary.

I made an appointment for a fitting at a local boutique that specializes in “image consulting.” Since I have gone up in size by 100ccs from the last time I needed one, it wasn’t as easy as just ordering another one. After a couple of tries, we found the right form to complement my current breast. It’s not perfect, but it’s pretty darn close. I also picked out three new bras. My insurance provider covers the prosthesis as well as bras. In fact, they cover up to six bras per year (this varies, so check with your provider). Most boutiques and stores like Nordstrom work with insurance and even submit the paperwork for you.

Here it is. It is lightweight and comfortable. Looks good under clothing too.

2014_11_13

 

By the way, this is working from home with cats (not my vid, but accurate):

Yep, looking good

WARNING: NSFW / graphic content below.

Yesterday was my one-month follow up after the removal of my right implant. It was also two weeks since the seroma was drained and small stitched pulled. Yep, looking good. The seroma is no more and the post-stitch hole has healed.

The only thing that’s wonky is the scar on the left side. It is sunken in as if stuck to something inside. I have not seen this before and asked Dr. M if I could massage this issue away, to which he responded that I could sure try. Worst case, he can fix it later. I had same reaction to that as my hub did when I told him: nope, not doing that. No more procedures unless absolutely, without question necessary to finish reconstruction.

My objective for this appointment was to get a thumbs up for surgery sooner than April. Right now I’m on the schedule for April 9th, which is six months after the removal. During this procedure we are going to be placing a tissue expander on the flat side. I got what I wanted and can do it sooner. Mandatory wait of only three months (January), BUT Dr. M is booked solid, so there goes that. I’ll check in with scheduling monthly for openings. Fingers crossed!

Later this week I have an appointment to pick up my prosthesis. Hopefully it will fit well. I’ll update once I have it. Until then, photos of my current state and the wonky scar:

2014_11_11  scar