Tag Archives: breast cancer

Team FORCE at the local Race for the Cure

Team FORCE

There we are: Team FORCE at our local Susan G. Komen Race for the Cure. We had a great time, even though the weather was not cooperating. We made a lot of new contacts in our local community, both of the vendor/organization type and the individual type. We met some really great people that may benefit from our support and us from theirs! Looking forward to more events as part of Team FORCE.

A lot of you have already supported us by either walking or contributing to our fundraising efforts, so a huge THANK YOU for that. We appreciate every step and every Dollar. If any of you would still like to help Team FORCE, here are some things you can do:

  1. Spread the word about FORCE: Facing Our Risk of Cancer Empowered FacingOurRisk.org – the only national non-profit dedicated to improving the lives of individuals and families affected by hereditary breast and ovarian cancer. People like me and many of you.
  2. Make a tax-deductible donation to Team FORCE via our team’s FirstGiving page: http://www.firstgiving.com/fundraiser/Vbmichellebraun/2013tidewaterraceforthecure. 100% of your donation goes to FORCE.
  3. Purchase some beautiful Origami Owl jewelry for yourself or as a gift. The Holiday season is just around the corner! 20% of sales go to FORCE. There are four pre-designed breast cancer related lockets (see below) or you can create your own, as I did and a few of my readers too – THANKS, LADIES!!! If you are interested in supporting FORCE and getting some great jewelry, visit our designer’s website and make sure to select Team FORCE Fundraiser at checkout: http://MartineNuera.OrigamiOwl.com.

Pre-designed lockets

Origami Owl Team FORCE

One month post-exchange

WARNING: NSFW / graphic content below.

It has been a month since my exchange surgery and over eight months since my prophylactic bilateral mastectomy. I went from about 184ccs of breast tissue pre-PBM, to 550ccs of saline in overfilled tissue expanders, to 350ccs of silicone gel in my Mentor round, smooth, high profile implants.

2013_10_5 FrontNot much has changed in the last month. I was hoping that the pocket on righty would close up a bit on the bottom, but that has not happened. This means I will most likely have a revision procedure this year to do that surgically. The new girls look fine in clothing, but I am not 100% happy when looking in the mirror. In addition to pocket revision, I am still planning on addressing the nipple asymmetry by removing the tip of the right nipple. I hope to wrap this all up by the end of this calendar year.

My scars are not pretty, but I already know I develop “two year” hypertrophic scars, so I am not surprised. I just started using Kelocote on the incision spots; hopefully this will help speed up their softening.

In other news, I just returned from a two week Europe vacation visiting Venice and my family; I’m excited to be participating in the local 2013 Race for the Cure on October 12th as part of Team FORCE (Facing Our Risk of Cancer Empowered – www.FacingOurRisk.org); and I was also recently featured in another article in the Fall 2013 edition of a local cancer magazine. Here’s my excerpt (changing names, because I want to continue to keep this blog anonymous):

“Mogatos says she never thought much about cancer until about ten years ago, when her 28-year old sister was diagnosed with breast cancer. In the intervening years, she’s had a great deal of time to think about it: she lost her sister to the disease, her mother was diagnosed with ovarian cancer, and another sister is undergoing breast biopsy.

Mogatos began having alternating ultrasounds and mammograms every six months to monitor her own breast health. She also had the BRCA test, which was negative. Once in a while she’d have an MRI, just to make sure everything was OK. Her doctor explained some women with breast cancer in their families choose to have a mastectomy, so she knew that was an option. But she was only in her early 20s, and “I was going along the lines of if it ain’t broke, don’t fix it,” she says.

In March of 2012, the time came to fix it. Mogatos picks up the story: “An ultrasound spotted some issues. Three separate masses were present. They had developed in the six months since the last mammogram. The oncologist recommended an MRI screening. Waiting for test results was hell, but when they eventually arrived, they were good – no cancer.

“In June, I felt something unusual during one of my monthly self-exams. The lump was in one of the three spots where the ultrasound found issues.” Another ultrasound confirmed that two of the three spots had increased in size and were now palpable. Mogatos had biopsies done, and again endured the terrible wait for results. There were some abnormal cells but no frank cancer. She was told to continue her self-exams and keep regular screening appointments. “The inconsistency of the messages I was getting was very hard psychologically,” she says. “I didn’t want to go through this again, having to wait for test results, feeling anxiety, then being relieved, and then ‘oops, maybe we made a mistake.’ I just couldn’t go through that again.” She began considering preventive mastectomy.

She was referred to Dr. M. “When I met him, we really clicked,” Mogatos says. “He brought up things no other surgeon mentioned. I talked to some of his other patients. I felt he’d be a great partner to get me through it.”

When the time came for surgery, she was ready. “I’d researched, I’d read, and I knew what to expect.” She was too lean for the DIEP procedure, so Dr. M placed tissue expanders, and a recent surgery replaced those with Cohesive Gel implants. “I’m ready to be done with the reconstruction,” she says. “It’s been sometimes painful, sometimes frustrating, but I’m so happy I did it. When I look at the big picture, the possibility of getting breast cancer and not making it through, like my sister, I have no regrets. It’s totally worth it. I never have to think about breast cancer again.”

Race for the Cure

Team FORCE

On October 12, 2013 I will be participating in the a local Race for the Cure event. I have joined Team FORCE and will be walking (nope, not racing) in memory and support of our loved ones who have battled breast cancer AND to help raise hereditary breast and ovarian cancer awareness. I am stoked to be participating in this event and hopefully meet more women like me right in my own back yard!

As most of you already know, FORCE: Facing Our Risk of Cancer Empowered (www.FacingOurRisk.org), is the only national non-profit dedicated to improving the lives of individuals and families affected by hereditary breast and ovarian cancer. People like me.

We are going to have a ton of fun at this event. Teal and pink paraphernalia WILL be involved. I got some teal knee high socks and a pink afro wig. Pics to come … I promise. Our team is already at 28 participants and we have only been at it for a little over a week! We currently have seven corporate sponsors with more on the way!

Origami OwlOne of our sponsors is my friend who is an Origami Owl Independent Designer. She will be donating 20% of sales (pre tax and S&H) to FORCE! How OWLsome is that? HOO is going to help us out and order an Origami Owl locket? There are four pre-designed breast cancer related lockets (see below) or you can create your own, as I did. Mine arrived on Friday and it is so awesome! I ordered a locket with five charms (pink heart with wings for my sister who died from BC, teal ribbon for my mom undergoing treatment for OC, LOVE for the rest of my family, girl cat for my two furbabies, and a G). I also ordered a charm for another necklace. Aren’t they really cute?!? If you are interested in supporting FORCE and getting some great jewelry, visit our designer’s website and make sure to select Team FORCE Fundraiser at checkout: http://MartineNuera.OrigamiOwl.com.

Pre-designed lockets

Origami Owl Team FORCE

BRCA mutations made simple

As many of you already know, although breast and ovarian cancer are prevalent in my family, those of us that have been tested are not carriers of any known BRCA mutations. I had blood drawn for the BRACAnalysis as well as the BART and no mutations have been found. This doesn’t mean that there is not a mutation in my family, however. It is possible that a BRCA mutation hasn’t yet been identified or it exists on another gene, such as TP53 or PTEN.

To me, genetics is a fascinating topic. So much so that I started my college education majoring in it! I love information and love learning about what really makes us tick and what doesn’t. To get a good grasp of what BRCA mutations really mean, you could do tons of research online, in a library, or by harassing your genetics counselor, OR you could just read this really awesome post written by Teri Smieja, posted on Andrea’s blog: BraveBosom.com.

BRCA mutations made simple

“A good way to think of it is this:  You have an instruction manual for making a car (the instruction manual represents the DNA). The car represents the protein. The instructions for making the engine (the most important part of the car) might be on the last page – say page 9663 – of the instruction manual (this could translate to a mutation BRCA2 9663delGT).  If that part of the manual is deleted, then the engine will never be made and the car will never run. Thus, a deletion on the last page of the manual could be just as harmful as an earlier mutation (say, one that ruined the rest of the manual, or one that deleted instructions for the wheels).”

Make sure you stop by Andrea’s blog and read the full BRCA Mutations Made Simple post.

Eighth expansion

WARNING: NSFW / graphic content below.

I can almost smell it: the end of the expansion process. This was supposed to be my final expansion, however I wimped out and we only added 25ccs to each expander, for a total of 525ccs/side. The goal is 550ccs, so I have another appointment for the final FINAL expansion in one week.

GravityThe reason for halving the volume is pain. The last expansion brought on a lot of pain. Not that I thought it was going to get more pleasant, but it was pretty bad. As usual, the worst of it come early in the morning. I’ve never dreaded getting out of bed so much. As soon as I sat up, gravity would work its magic. Talk about grumpy mornings.

The pressure was intense and I was on ibuprofen for about three days after. It didn’t help that we spent that weekend camping, so I was not sleeping in my own comfy bed. I really thought if someone poked me, a foob would pop. I even had a dream that my cat sat on my chest and the thing just blew up under her. Not like a slow deflation, but a violent explosion! I woke up in a sweat and immediately groped my chest to make sure everything was still there. Whew!

Enjoy the pics. It’s getting crowded down there!

2013_7_12 Fills

100 + 50 +75 +75 + 50 + 50 + 50 + 50 + 25 = 525ccs

Help change or save a life

The My Destiny Foundation needs your help!

Do you want to make a difference? Want to help someone who is at high risk for breast cancer. Join the fight by making a donation to My Destiny, an amazing non-profit organization that was previously highlighted as one of my favorite resources (see: Resource highlight).

My Destiny’s mission is to educate, support and most importantly, empower women of all ages who are at high risk for developing breast cancer and who are choosing to have a prophylactic mastectomy to reduce that risk!  We are dedicated to providing information, resources and financial assistance to this high risk community.  We provide a safe haven for women so they may gain knowledge about their options, share their journey, and to support and inspire each other.  Our online community (breast sisters as we like to be called) will inspire each other to be in charge of their health and more importantly, their destiny.

Help make a difference! This could be your mom, sister, daughter, friend, neighbor, colleague, or a complete stranger. Any gift, no matter how small, will help offset the costs for genetic testing or healthcare for a woman in need.

Your gift will help change and SAVE lives! Click here to visit the My Destiny website and make a donation.

Self-exams

You can be a heroine, you can be a powerful villain, but you are not immune. Ladies, do your self-exams! I ❤ this ad campaign created for Mozambique Fashion Week.

Speaking of Mozambique, do you have any gently used-bras you can donate? Free the Girls!

Nobody’s Immune to Breast Cancer. When we talk about breast cancer, there’s no women or superwomen. Everybody has to do the self-examination monthly. Fight with us against this enemy and, when in doubt, talk with your doctor. – Associação da Luta Contra o Cancer (ALCC)

ALCC Wonder Woman

ALCC Cat Woman

ALCC Hulk

ALCC Storm

Nipple delay

Wondering what a nipple delay is? I was too! I hadn’t heard of this procedure until Angelina Jolie announced to the world that she underwent a prophylactic double mastectomy and this procedure was part of the process.

Since that announcement, many different articles and opinions have been published. A lot of them positive, but a few negative. That’s another post for another day. A few pieces did provide more information on the nipple delay procedure.

Breast Reconstruction Guidebook Figure 1.1What is nipple delay?

During the nipple delay procedure, the surgeon makes an incision in the skin and severs the breast tissue and blood vessels directly beneath the nipple (it remains attached to the surrounding skin). Due to this, the nipple is no longer dependent upon the blood supply directly beneath it and becomes accustomed to getting its blood supply through the skin. According to the Pink Lotus Breast Center blog, it actually recruits additional blood flow not previously established.

This is an uncommon procedure. If it is elected, it is performed some time before the mastectomy; two weeks for Angelina Jolie.

Why have a nipple delay?

Surgical nipple delay is used to decrease likelihood of nipple necrosis, which can occur because of loss of blood supply and can lead to nipple loss, following a nipple-sparing mastectomy.

Breast skin is fragile after mastectomy. If it’s exceptionally thin after the breast tissue is cut away or is handled too roughly, it may die. The same result may occur if the breast surgeon severs too many blood vessels that feed the skin or uses eletrocautery too aggressively and burns the inside of the skin, which may then blister and die.
– Steligo, Kathy. Breast Reconstruction Guidebook: Issues and Answers from Research to Recovery. Maryland: The Johns Hopkins University Press, 2012. Print, third edition.

I was not informed of this option prior to my own nipple-sparing mastectomy. My compromised blood flow resulted in necrosis on my left breast and I lost a nipple. If you are interested in reading about my bout with necrosis (including photos) and the hyperbaric treatment I underwent in an effort to thwart it, please read Tissue necrosis.

Related articles:

Source of Figure 1.1: Steligo, Kathy. Breast Reconstruction Guidebook: Issues and Answers from Research to Recovery. Maryland: The Johns Hopkins University Press, 2012. Print, third edition.

Angelina Jolie: I decided to be proactive

AngelinaJolieThe HBOC community is buzzing today. I’m sure you’ve already heard the news: Angelina Jolie underwent a prophylactic bilateral mastectomy in February ’13. She also revealed that she carries a mutated BRCA1 gene in an op-ed piece she wrote for the New York Times.

I wanted to write this to tell other women that the decision to have a mastectomy was not easy. But it is one I am very happy that I made.

For any woman reading this, I hope it helps you to know you have options. I want to encourage every woman, especially if you have a family history of breast or ovarian cancer, to seek out the information and medical experts who can help you through this aspect of your life, and to make your own informed choices. – Angelina Jolie

I’m very thankful and excited that she has decided to share her story. Along with Sharon Osbourne, Allyn Rose, Giuliana Rancic, Christina Applegate, Sheryl Crow, and other women in the limelight, she is using her platform to educate and bring awareness to hereditary breast and ovarian cancer. The story was the main feature on the CNN.com website the day the op-ed piece was published!

Just like me, Angelina Jolie had a nipple-sparing double mastectomy and chose the expander/implant route for breast reconstruction. She first had a nipple delay procedure, which is an extra step done two weeks prior to the mastectomy (see: Nipple delay). She had an inframammary fold incision, allograft, and a whopping six (!!!) drains post-op. The Pink Lotus Breast Center, where Angelina Jolie had her PMB, has posted more details of her journey. Read their great blog post.

Related articles: