I have been preaching for a long time now that finding a support group is really essential and this is the #1 item on my list of Resources. Have you joined one yet?
In addition to local community groups that meet in-person, you can find support groups online, specifically Facebook. They have been created and are managed by and for women who are considering mastectomy, preparing for one, or have already been there done that and are there to support those that haven’t (other topics related to hereditary breast and ovarian cancer are also frequently discussed; this varies by group).
I joined a few of them a couple of months pre-PBM and they were and continue to be invaluable resources for me. Lots of advice, photos, love, support, and just general sisterhood. Here are a few of them:
- My “home”: Prophylactic Mastectomy (500+ members)
- BRCA Sisterhood (1,800+)
- Beyond the Pink Moon (1,500+)
- Young Previvors (300+)
- Previvors (170+)
Bonus: if you write a relevant blog, join us in the Breast Cancer & Previvor Blogs group.
These are all closed/private groups, which means you cannot see the posted content unless you are a member. If you’d like to join one, find the group (follow my link or search on FB) and click on the Join Group button in the top right corner of the group page. A few of them require the requesting person to friend one of the administrators and complete a questionnaire before they can participate, so keep an eye on your FB inbox (including the “Other” inbox).
Come on down and join us! I’m happy to assist anyone that is interested. Contact me.
“I can’t say it enough to all of you beautiful ladies, but thank you :). When I had my PBM, I did it with the support of very few people. I have struggled more than I thought I ever would and then about 3 weeks after surgery I found this group. I had no idea that there were such wonderful women that have gone and are going through the same struggles as me. I know no matter what happens I have a huge group of the most caring, strong, and wonderful women that have my back and will always be there for me. I am beyond blessed to be part of this group. I never thought at this stage of my life that I would make such wonderful new lifelong friends. So I just want you all to know I appreciate you all xoxoxo” – posted in the Prophylactic Mastectomy group (sharing with author’s permission)
I joined some Lymphoedema groups on LE …where there are non I could join face to face … I have found this helpful to share experiences..Helen